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Renee CK
writer, editor, tweetable http://twitter.com/chicskirt
I'm a fun girl who's on a quest to figure it all out. I'm cynical but living the dream- I'm not sure how that happened exactly. Follow along in my blog for fun, mayhem, and merriment. There's never a dull day! (Or, go download my book!)...
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Life is Good

Monday, September, 8, 2008

My daughter is unreal.  She’s adorable, (I’m not the only one who thinks this!) full of personality, and she really thinks she’s a princess. From the minute she was born, she never knew fear- and didn’t really need to. As the youngest child, only grand daughter for my in-laws, and her daddy’s girl, nothing was going to hurt her. 

kiss.jpg
(baby girl 6 months- yes, my actual kiss- we had just been playin’)

Last year she had a kindergarten teacher who loves children like her.  Once she was done with something, actually or by her own proclamation, she was allowed to be done, leave the table, and go do what she wanted to do.  She was also allowed to spend the first 10 minutes of each school day in the classroom of a teacher who she had a “special bond” with; not her own teacher.  I noticed that there seemed to be some delays in her academic performance but was quickly reassured that she’s young (has a late birthday) and would quickly catch up.  I planned on her having the first grade teacher my son had which automatically meant the teacher would know how to manage a learning delay and would not be swayed by her personality.  However, she did not get that teacher.  Mortified doesn’t even begin to say how upset I was. But, I decided to see how it goes and go from there.  A month into the school year, we’ve had 2 solid weeks of “yellow” behavior, brought down from green (but before red!) because of inability to stay on task and follow directions.  Two weeks ago when I got the first major stack of classwork I took note that a great deal of it was 2 on a scale of 1-3, 70%, needs improvement, done with the teacher, or all together messed up.  Friday when she came home with another week’s worth of mediocre work, I got angry. 

I had a serious talk with my daughter. We re-did work that was extremely low quality.  After that, I told her that I thought she needed to think about what it would take for her to be a better student. While she did that, I wondered what I was going to do.  I am not above holding her back a year. We did it with my son so the 3 year span between my kids that I had planned on has been reduced to 2.  She’s young so it wouldn’t be a big deal.  But do I do that now considering that I think the basic classroom behavior skills were not learned or do I keep her in first with her retaining 70% of the massive amount of information and have her do it again next year?  I stopped myself and decided to call her teacher to ask what is really happening in class.  Maybe, like her reading ability test, she just needs some education on how to do these new things.

Her teacher thanked me for calling. She told me that my darling child does not pay attention in class, does not stay on task, and as such has lacking performance and does not complete work according to her ability.  I asked if maybe we have an issue that we should be testing for. What I’m thinking is hyperactivity disorder.

The weight of this has been on me all weekend.  I am upset that her teacher last year instilled such poor classroom behavior habits and know that I and her teacher are going to have to spend a great deal of time re-teaching her what is and what is not appropriate.  And this may not even solve the issue.  

Sturday night, something led me to my friend’s blog.  My friend Jen was pregnant at the same time I was pregnant for my son.  We shared milestones and my son happened to be born six weeks early.  She had her son, Sam, 3 weeks after I had mine- and he was still born.  I had complications with my pregnancy and so seeing my son come out perfectly healthy aside from some jaundice that was treated at home, and seeing Jen and her husband mourning Sam who up until she woke up in a pool of blood, was a perfectly healthy pregnancy forced me to remember how extremely blessed I was.

It’s been 9 years since the boys were born and my son’s full name that he was baptized with begins with Samuel to remind us how blessed we are.  However, in the hustle and bustle of life and 5 new children, (1 of them mine, 4 of them Jen’s) sometimes Sam gets put in the back of my mind. 

So Saturday night with the weight of extra attention for my daughter on my shoulders, I read a post about Sam’s birthday party.  Each year the family goes to Sam’s gravesite and releases balloons for him to get in Heaven.  It was the first time I’d seen his headstone.  I cried.

My baby girl might have some difficulties and I might have to dig a bit deeper to help her, but you know what?  At the end of the day, I get to kiss her after she huffs her freshly brushed breath on me.  I get to lay beside her in bed with her golden hair tickling my shoulder and listen to her struggle over words.  And I get to kiss her goodnight.

When friends call me asking “what do I do now?” after getting a diagnosis for their child, I remind them that the child they are so concerned about is the same person today, after the diagnosis, as s/he was the day before.  The only thing that has changed is that a new reality has come into their lives to help them help their child by identifying their special needs.  It does not matter if my daughter is affected or just needs a kick in the pants to get her going, she is the same silly, sassy, bubbly, fun-loving, full of life baby girl that I’ve always known and loved.  And I just get to spend a bit more time helping her.  Who wouldn’t be thankful for spending more time with their child?  Jen would give most anything to spend one day with Sam. 

The things that concern us most do so because they matter most to us.  Be thankful and

Enjoy!
Renée


sarahthequeen05
sarahthequeen05
Posted Mon, 09/08/2008 - 09:53
This made me get choked up, especially the birthday party part. I totally believe in your title, though. Life IS good all the time. I was surprised at the large number of people who asked me if I was angry or wondered how angry I was after my diagnosis, because anger never entered my mind. I was just so relieved that they figured out what it was and knew how to treat it. Studies show that people heal 8 times faster with a positive attitude, and when I think about that statistic and the number of angry people I see at the doctor's office sometimes, it makes me sad.
ReneeCK
ReneeCK
Posted Mon, 09/08/2008 - 12:13
One of the first questions I'm asked when people learn that my son has autism is "how do you think he got it?" How could I not know that they want to put me in the mercury included injection category with Jenny McCarthy? Truth be told, I see that it comes through the paternal side of my husband's family. But, I don't think that matters. HOW it happened, WHY it happened isn't important unless we're asking because we are looking to nip it at the root. If you're covered in honey and being stung by bees- maybe need to shower, but if you have lymphoma or a child with autsim or any other "not washed off with a shower" condition, your energy is wasted if you spend it being angry.

Moving forward is the best thing we can do. All of us with issues need to stand together and say "yeah, this sucks, but don't ask me how, ask me what I'm doing about it." (Quick, hold my hand- I got your back!) It's much more productive than wallowing in it. (and now I have ANOTHER blog subject...look for Michael Sawyer's story soon.)

Bald head up girl. You're better than a statistic!
krrobi
krrobi
Posted Mon, 09/08/2008 - 10:32
Great post. Working in the school district, I still get pissed off when I hear a teacher say a child has ADHD...I'm thinking, How the hell do you know? Cause the child is spunky and a spit fire? A teacher told me this about my youngest son, and I was SICK, really physically sick. I mean, my kid loves life. And that's that. Yes, he was tested. Nothing wrong, except he's an active, social kid. My point is this, we over medicate our kids...so just be careful, and I know you will educate yourself on EVERYTHING, Renee, cuz that's how you roll. Your daughter is unbelievable! And so are you. :)
ReneeCK
ReneeCK
Posted Mon, 09/08/2008 - 12:21
I just posted a great reply to you saying I agree and it got lost in a SUE. (Simple User Error)

I think the bottom line is we expect so much of our children, many of whom have not grown into their personalities and do not know how to manage or express what they are feeling. Medication is not the answer- understanding is.
Charlene Ross
Charlene Ross
Posted Mon, 09/08/2008 - 17:40
Renee, I know just how you feel. My daughter probably does have ADHD. Oh well. Last year her teacher made it clear (without saying it directly) that we should medicate her. Why? Because it would make the teacher's job easier. Would it make sitting still in school and focusing easier for my daughter - probably. But would it make her life BETTER? I don't think so. She is so full of life - so creative and sensitive and smart (and yes, frustratinly infuriating) that I just can't imagine her being a shell of who she is - no matter how much "easier" it would be. Once she was telling me a bedtime story and said, "It's like Mother Nature throwing Valentines to the earth," when describing something. Now I ask you, how can you put a 7-year-old who says something like that on meds? You sound like an incredible person and an amazing mom Renee. Your kids are truly blessed to have you.
Shoegirl1970
Shoegirl1970
Posted Mon, 09/08/2008 - 23:21
Charlene, A lot of Hispanic children are diagnosed as ADHD and the truth is that many children are diagnosed this way, when in fact they are highly intelligent. I'm sure you have read up on this. I am struggling with my son in Pre-K (only the 3rd week of school), but I'm already being treated like there's something wrong with my son. This is a child who can ask me why I have a photo of a typewriter by my computer and then asked me to "show" him on the computer who the phtographer was. A child who can identify Frida Kahlo's paintings. I'm sure you feel exactly the same about your daughter.
BCBlogger
BCBlogger
Posted Mon, 09/08/2008 - 20:37
to your daughter and to you for handling this situation. My poor brother got all the way to third grade before they realized that he had dyslexia. He was such a sweetie, that teachers passed him through, but damn. . .he needed alot more help alot sooner than he got it. Kudos for you to being a mom AWARE. xoxo
Shoegirl1970
Shoegirl1970
Posted Mon, 09/08/2008 - 23:17
I really needed to hear these words as we struggle with my son getting adjusted to Pre-K. He is not having an easy time. I read this and it makes me realize that I can't get frustrated. I have to realize that it's part of life and that at least I have a beautiful healthy child to fret over. Thank you for your kind words.
getaclewis
getaclewis
Posted Tue, 09/09/2008 - 07:44
We have watched a boy in our Sunday School transform, in the midst of his autism over the course of two years, from that painfully shy child who came to class wearing sound-blocking headphones and huddling in the corner, drawing his wildly creative pictures to actually standing up on stage, smiling from ear to ear, in front of 100 kids to help the song crew sing and dance. (Every teacher in the room was bawling that day. I'm crying now even thinking about it.) We also have a wild child, a little girl I cherish, who is medicated for ADHD throughout the week. I've asked her mom to please not medicate her on the weekends if she doesn't feel she must, because that numbed shell of a child is NOT the same exuberant girl and, even though it can disrupt, we love her chaos! "Trust Life's unfolding..."